Friday, February 12, 2010

Tuesday, February 9, 2010

It was a celebration of Ryan's life


One year ago we had a viewing on this night. One year ago tomorrow we had a celebration of Ryan's short life. I know it was a funeral, but everyone that was there came to remember Ryan. I was so surprised at how many lives that Ryan had touched and the out pouring of love given by friends and family.


I do remember how it took my breathe away when the fireman stood at attention at Ryan's casket. Muscular Dystrophy is a horrible disease, but Ryan did have a special attachment to the fireman through the association he had with them during the fill the boot campaign. They had great compassion for him and what he was going through, we loved them all.


This year has been filled with a lot of changes in my life. I am no longer my son's caregiver. I miss his smiling face. But, know that he was in pain and that it was getting worse. Life is not as structured as it was. I try to keep busy, a busy mind for me keeps away the feel sorry for yourself feeling. It still comes at times, I think this is normal. If not I guess I am abnormal.


Thanks to everyone again for being there with me through the good and the sad times.